Leila's story

Leila, from an early age, was a child of extremes. One minute, sitting quietly threading wooden beads onto a string, the next running headlong through the house, overturning furniture, biting her own hand until it bled. Distressing for her; distressing for her parents.

Sometimes her outbursts appeared to have no cause at all. Sometimes, they did. Brushing her teeth was an activity that triggered such a violent reaction from her that it was easier not to bother.

Taking her out and about was best avoided too. She had no sense of danger, no traffic awareness, so her mum had to hold her hand at all times. If she managed to wriggle free, she would fling herself at people whether she knew them or not, showering them with inappropriate physical affection.

Aged 10, with a diagnosis of autism and learning difficulties, Leila came into our care at Cambian. Other schools had failed her. She was unable, back then, to respond to simple one-word directions and would not engage in any learning activity. Her teeth remained unbrushed.

Our gentle, yet firm and consistent approach provided the emotional support that Leila needed. The predictability of school routines and the structure within the day gave her a feeling of comfort and security. Use of a carefully-limited simple choice of words, reinforced with visual clues and signing, allowed her to understand exactly what was expected of her. Her frustration diminished within weeks. Many of her angry outbursts could be defused before they had time to explode.

Highly-trained staff used the technique of behaviour reshaping to moderate inappropriate actions – so the hitting and grabbing of others was re-shaped into a clap or high-five.

And the teeth brushing? It’s surprising how many different sensations are involved in this single activity. Any one of them could have caused Leila’s distress. Was it the need to open her mouth wide? Was it the feel of the bristles? Maybe the smell, texture or taste of the toothpaste? Leila was unable to tell us.

With infinite patience, each factor was considered and changed to see if it would have a positive effect. Bubblegum flavoured tooth gel might not be for everyone, but it worked for Leila!

Today, three years on, Leila can follow one- or two-word directions, attends small group classes, and enjoys supervised trips to the local shop - offering money, understanding the concept of change and buying the things she needs – including toothpaste.

Leila’s life is more tranquil and, as a result, her parents can relax a little and enjoy a better family life too.

At Cambian, we take the time to make a difference.

 


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